Update on Miss Emri

I'm updating from my phone so I dont know how it's going to turn out :).

Monday, we went to the dermatologist for her to check the progress on the removal of the hemangioma. She was happy with the results and actually said that the results were better than she expected. THAT'S A WIN!!

Yesterday, we met with Emri's neurosurgeon. He was happy with the way the hemangioma has gotten better, but it's still not where he needs it to be. He talked to us for a while about our options and weighed the pros and cons for each option, then he came to the conclusion that he wanted to wait a couple more months before we attempt surgery. There are definite risks with both options:

If we did surgery now, cutting through the hemangioma, the wound would fall apart and wouldn't heal. Because its pretty much in her diaper, obviously it's not the most sanitary place so if the skin doesn't heal we run the risk of her getting infections.

If we wait to do surgery, we run the risk of her disease getting worse and her losing function of her bladder and bowels. Obviously, loss of function is irreversible.

All options seem pretty scary to me, but Dr. Oakes told us that if it were his loved one, he would choose to wait to do surgery. Basically, there's a much higher chance of her getting an infection now than her losing function between now and surgery time.

So our next step is to possibly do some laser treatments on the hemangioma to make it go away faster. The quicker it goes away the quicker we can do surgery.

For those that are praying relentlessly for her, first of all, THANK YOU! Second, here are specifics to pray for:
- that her insurance will approve to pay for the laser treatments
- that we can start the treatments quickly and that they work quickly
- that she feel little pain from the laser (it's a pretty painful process)
- if we have to wait a while for surgery, that there be ZERO loss of function to any part of her body
- obviously, complete healing for her little body

Thank you all! I have another post I'm working on right now, so be looking out for that! :)